Setting health priorities in research: an african perspective
Keywords:
Ethics, research, health priorities, community benefits.Abstract
There is much biomedical and epidemiological research taking place in Africa today. This research is both horizontal (involving local researchers and regional research institutions) and vertical (involving international research sponsors and collaborators). Research is the necessary pathway for any biomedical innovation designed to improve health and, in most cases, such research requires the use of human beings as research participants. Research participants cannot however, be viewed in isolation; they live in communities has become almost a mantra in the research ethics world to say that communities must benefit from positive research outcomes. This ethical rule is important; however, my paper will focus on community involvement prior to the actual research being carried out. Using African examples as case studies, I will examine the extent to which communities are involved in setting the health research agenda for their members and whether or not they are included in priority setting activities. Research being undertaken in several African communities may indeed address health problems in that community; however, how high are those problems in the list of health priorities for that particular community? Are other important health problems being neglected? While much has been said about provision of treatment shown to be successful after research to the wider community, not enough has been said about who decides what research is important for the community before such research is carried out.. This begs the question: how do communities benefit from research activities taking place within their own locales? It
Downloads
Published
How to Cite
Issue
Section
License
Acta Bioethica is edited by the Interdisciplinary Center for Bioethical Studies of the University of Chile and published under a Creative Commons Attribution Share Alike 4.0 International license.Intellectual property::The submission and evaluation of the manuscripts received implies that the author (s) declare that they are original and exclusive owners of the author's economic and moral rights over the article, in accordance with the provisions of Law 17.336 on Intellectual Property (Chile) In case of having used outside works in the creation of the article, in whole or in part, they declare that they have the respective authorizations or licenses of use of their respective owners or that their use is expressly protected by law.The author expressly releases from any subsequent responsibility to the Interdisciplinary Center of Studies in Bioethics of the University of Chile, for any legal, regulatory or contractual infraction that eventually commits or has committed in relation to the work, being obliged to repair any damage that results from the Infringement of these or other rights.The author authorizes the Interdisciplinary Center of Studies in Bioethics of the University of Chile, in order that, by itself or through third parties expressly authorized by it, exercise the rights that are specified below, with respect to the article sent:Publication, edition, reproduction, adaptation, distribution and sale of reproduced copies, including making available to the public online by electronic or digital means, of the article, in Castilian language, in any known territory, And for all types of printed edition in paper and electronic or digital, by its inclusion in the journal Acta Bioethica or another publication that publishes the Center.This authorization is conferred on a non-exclusive, free, indefinite, perpetual and non-revocable basis, as long as the corresponding rights subsist and release the Interdisciplinary Center for Bioethical Studies of the University of Chile from any payment or remuneration for the exercise of Rights.The authors retain their copyright on their works, being able to reuse them as they decide.