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Shared decision-making in genetic counseling: a scoping review

Authors

  • Peng Chenyang Xiangya School of Nursing, Central South University, Changsha, Hunan
  • Ning Ni Xiangya School of Nursing, Central South University, Changsha, Hunan
  • Li Yiyu Xiangya School of Nursing, Central South University, Changsha, Hunan
  • Tan Xiangmin Xiangya School of Nursing, Central South University, Changsha, Hunan https://orcid.org/0000-0001-8129-3770
  • Tu Chaofeng Reproductive and Genetic Hospital of CITIC-Xiangya, Changsha,
  • Sun Mei Xiangya School of Nursing, Central South University, Changsha, Hunan
Vol. 28 No. 2 (2022): DESARROLLOS ACTUALES Y BIOÉTICA

Abstract

Background: It is challenging to make informed decision in genetic counseling. Shared decision-making provides a chance in balancing the information and preferences between counselors and counselees. However, the status and prescriptions of shared decision-making have not been extensively studied in genetic counseling. Aim: To develop an up-to-date literature review of the shared decision-making in genetic counseling, identify knowledge gaps, and provide inspiration and suggestions for the development and practice of genetic counseling. Methods: “Genetic Counseling” and “Shared decision-making” were used to search in PubMed, Web of Science, Embase, Wanfang, CNKI and CBM databases. The search deadline was March 26, 2021. Results: A total of 22 articles were included, and four themes were identified: how people involved in genetic counseling, different stakeholders involved in SDM, multiple facilitators and barriers to SDM and the effectiveness of SDM in genetic counseling. Conclusion: Each participant needs to recognize their boundaries and make the best effort to involve in the shared decision-making. In the future, multinational studies should be considered for bringing shared decision-making to the global scale and well-designed studies are required to explore the long-term impact of shared decision-making in genetic counseling.

Keywords:

genetic counseling, shared decision-making, influence factors, scoping review

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How to Cite
Chenyang, P. ., Ni, N., Yiyu, L., Xiangmin, T. ., Chaofeng, T., & Mei, S. (2022). Shared decision-making in genetic counseling: a scoping review. Acta Bioethica, 28(2), pp. 227–237. Retrieved from https://actabioethica.uchile.cl/index.php/AB/article/view/68995
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Acta Bioethica
Centro Interdisciplinario de Estudios en Bioética
Universidad de Chile
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