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Acta Bioethica

SciELO Chile

Epistemological dimensions for informed bioethics of disability

Authors

  • Raynier Hernández Universidad de las Américas
  • Beatriz Revuelta Universidad Central de Chile
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Abstract

The relationship of bioethics with disability and its understanding beyond dominant biomedical knowledge has been controversial. Debates about bioethics are often disturbing for people with disabilities, and for disability rights activists, given the oppressive assumptions associated with considering disability only limited to a definition of an illness, which must be cured. This article proposes some key epistemological dimensions for informed bioethics of disability. For this purpose, it initially presents the controversies and tensions around bioethics and disability, and subsequently develops three epistemological dimensions: bioethics that understands disability from a human rights perspective; bioethics that investigates considering the social and critical studies of disability, and bioethics that considers the experiences lived by people with disabilities in decision-making.

Keywords:

bioethics, disability, informed bioethics of disability