Informaçao genética, intimidade e discriminação
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Informação genérica, intimidade, discriminação, genoma humano, hábeas data.Resumo
As vantagens decorrentes dos testes genéticos são muitas, porém, a informação genética utilizada de maneira inadequada pode comprometer a intimidade pessoal e familiar gerando discriminação. As informações do genoma de uma pessoa e de sua família são confidenciais e devem ser protegidas por medidas adequadas de segurança. Somente poderão ser utilizadas com fins específicos e não podem ser cedidas a terceiros, salvo quando de consentimento expresso do interessado ou em virtude de mandato judicial. Em termos semelhantes estão consagradas na Declaração Universal sobre o Genoma Humano e os Direitos Humanos e o Conselho da Europa.
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Acta Bioethica is edited by the Interdisciplinary Center for Bioethical Studies of the University of Chile and published under a Creative Commons Attribution Share Alike 4.0 International license.Intellectual property::The submission and evaluation of the manuscripts received implies that the author (s) declare that they are original and exclusive owners of the author's economic and moral rights over the article, in accordance with the provisions of Law 17.336 on Intellectual Property (Chile) In case of having used outside works in the creation of the article, in whole or in part, they declare that they have the respective authorizations or licenses of use of their respective owners or that their use is expressly protected by law.The author expressly releases from any subsequent responsibility to the Interdisciplinary Center of Studies in Bioethics of the University of Chile, for any legal, regulatory or contractual infraction that eventually commits or has committed in relation to the work, being obliged to repair any damage that results from the Infringement of these or other rights.The author authorizes the Interdisciplinary Center of Studies in Bioethics of the University of Chile, in order that, by itself or through third parties expressly authorized by it, exercise the rights that are specified below, with respect to the article sent:Publication, edition, reproduction, adaptation, distribution and sale of reproduced copies, including making available to the public online by electronic or digital means, of the article, in Castilian language, in any known territory, And for all types of printed edition in paper and electronic or digital, by its inclusion in the journal Acta Bioethica or another publication that publishes the Center.This authorization is conferred on a non-exclusive, free, indefinite, perpetual and non-revocable basis, as long as the corresponding rights subsist and release the Interdisciplinary Center for Bioethical Studies of the University of Chile from any payment or remuneration for the exercise of Rights.The authors retain their copyright on their works, being able to reuse them as they decide.
